Re: I have a question
Posted by: "Zona" http://us.f374.mail.yahoo.com/ym/Compose?To=zonaszone@shaw.ca&Subj=annnmouse
Tue Nov 20, 2007 12:20 am (PST)
>If all this is for real...and I know it is...what is the next >step? I mean my insurance refuses to pay for anything for me it >seems. I've been paying for my doctor appointments, my supplements, >air cleaners, masks, and chelation, etc. out of pocket. I've only >been able to work sporadically over the past few decades and usually >don't stay employed for more than a year at a time. I don't know >anything about the "system".Marlena this is something i really understand. I was pregnant when i got ill, had three other kids, had just gone to university a couple years before and had NO insurance. That was 28 yrs ago and all those years I had no insurance. I always had to pay out of pocket. But i learned from my friends who did that it didn't help a lot because insurance typically only covers standard type treatments and doctors and those kind did me, with mcs, no good at all. I can't take any meds and didn't need or want surgery! Now that I'm in canada with universal health care it still does me little good. I've been here almost 10 yrs and have only seen an md. maybe four times and never for cfs or fm or mcs as they don't dx cfs or mcs here in my city and what i need isn't covered. I do on occasion go to a chiropractor when i can afford it> God has been faithful to provide, but I'm wondering how do I find > out what resources are available legally to me...or is that an area > I'd be better off avoiding?if you worked enough prior to illness you might be able to get SSDI. Or, if your family is under a certain income level you might be able to get SSI. I do know people who have gotten either or those with cfs and fm dx but don't know anyone who had just mcs though someone here might.> I'm struggling emotionally with being a financial drain on my > family. I want to work. I've applied to a few places that I knew > were desperate to hire holiday help...and they decided not to hire > me..I'm thinking because I told them I cannot use disinfectant > sprays without becoming very ill. It puts them in fear of being > liable if anything were to happen to me while I'm working for them. But> yet if I don't say anything, then I become too ill to be able to > function to work.Most of us are unable to work a 40 hr week, and some of us can't work at all. We have too many limitations. I can't get any kind of disability and so i have always worked from home doing my own businesses. Currently I have a computer service and repair business and do graphic arts etc too. Even so I can't work enough to support myself and doing this from home against competition in a town with many same kind of businesses who have storefronts when you have no contacts to speak of isn't easy either. Prior to moving here I did architectural design and drafting but lived in a small town where i didn't need to do any advertising to get known.I know it doesn't help the finances to say this but maybe it needs to be said anyway? And that is - we DO work even when it isn't for a paycheck! And we do have worth and value to our families! It is especially urksome to me that we live in a day and age when homemaking and childcare is so devalued that it isn't consider a job or work and when it comes to needing ssdi for instance, we don't count ? Ok that's my soapbox LOL. But seriously even if all one can do is verbally support a spouse and/or child or even a friend for those who aren't married, still that has worth. Some are prayer warriors, some speak uplifting words to those who are hurting. NO ONE i know of who is ill, no matter how ill, has no value! Everyone does.This is one of the hardest things to get across to oneself and accept when you first come to terms with being ill. One of my best friends who is a pastor's wife and I talked about this once upon a time. Even she struggled with feeling like she did nothing, felt guilty about it. She said one of the hardest things for her to learn, even tho she knew it in her head, was that God loves us, not for what we DO ie work, but just because He loves us. Period. !>> The next step I'm thinking of taking is to apply to work for a > home health service. As usual, I'll do what I can until I just > can't anymore and I'll quit. Is there a better way? I mean, how > do other people with disabilities get the help they need? If I > were to need to be a client instead of an employee of the home > health care, how do I get there? There is so much I cannot afford > out of pocket, that I do without, and what we can't do without, we > put on credit until I can get well enough to work to pay it > off. Right now we are $15,000 in the hole and I need a job to pay > it off. How have some of you found help/assistance?>> MarlenaWell be carefull not to push yourself too far! Too many of us here did that, pushed until we dropped flat on our face. Not a good thing to do. (working).We are a 'two of us ill" family. Neither dh or I can hold down a job. He gets a very small disability pension and I get nothing. It is very difficult... and worrisome. I'm sure others here could share stories of struggles too. Unfortunately it's common. I'm too tired at the moment to add some ideas ...but i do know others here can tell you about disability assistance etc too.zona
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Re: I have a question
Posted by: "writerabc7777" http://us.f374.mail.yahoo.com/ym/Compose?To=writerabc7777@yahoo.com&Subj=writerabc7777
Tue Nov 20, 2007 6:32 am (PST)
Hi Marlena..so very very sorry for all your difficulties.many of us have been faced with similar issues.I have been on government disability since the late 80's.Do you know about Share, Care, Prayer? It is a Christian group thatgives free counseling (over the phone as well) to people withenvironmental illness.Here is their website:http://www.sharecareprayer.org/and here is their address:Share, Care and Prayer, Inc.P. O. Box 2080Frazier Park, CA 93225Perhaps they could give you some guidance.I had to learn a lot of new coping skills and ways of looking at myproblems. I did many things. I did a lot of research, kept askingquestions, etc. etc. etc. until I started getting the information andanswers that I needed.As far as work goes, maybe there are some professional resources thatdescribe various kinds of work from home jobs. I have also heard aboutmedical transcription. I think there is legal transcription as well.Some people have set up businesses through Ebay. I understand thereare various kinds of opportunities. ..As far as navigating the world of medical bills, I think there areways to make progress in that area as well.best of luck to youtake careJon--- In http://us.f374.mail.yahoo.com/ym/Compose?To=CMCS-EI%40yahoogroups.com, M Taylor
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